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Dentists in Distress

Fear of the dentist is practically a rite of passage in youth. Growing up, I wasn't exactly afraid of the dentist; rather, any excuse to leave school early was a powerful incentive. These days, I have a more complicated relationship with dentistry: I go to get answers and try to feel better, but I always pop a prophylactic ibuprofen or two in case my jaw protests from the oral gymnastics.

Patients in Los Angeles or New York City Needed for Clinical Study - Comparative Study of Women Considering or Currently Receiving Botox© Injections for TMJ Pain

Are you a woman with "TMJ" pain in facial muscles, who has either: a. recently had Botox© injections for your pain or b. not had Botox© for your pain but has thought about such treatment? If either is true for you, you may qualify for an observational research study centrally administered by the NYU College of Dentistry. It is funded by the National Institutes of Health (NIH). The purpose of this study is to understand potential health risks that may be caused by treating "TMJ pain" with Botox© injections.

Patients Front and Center at the 2018 TMJ Patient-Led RoundTable

It is still all too fresh in the minds of many patients. Fifty years ago, between the 1970s and 1980s, some 10,000 TMJ patients received Vitek jaw implant devices.

Funding Opportunities now available for the NIH Common Fund’s Acute to Chronic Pain Signatures program

The NIH Common Fund's Acute to Chronic Pain Signatures program aims to understand the biological characteristics underlying the transition from acute to chronic pain and what makes some people susceptible and others resilient to the development of chronic pain.

Opportunity to Voice Your Opinion: U.S. Government Officials Want To Hear from Patients with Pain

FDA Public Meeting on Patient-Focused Drug Development for Chronic Pain On July 9, 2018, FDA hosted a public meeting on Patient-Focused Drug Development for Chronic Pain. https://www.federalregister.gov/documents/2018/05/15/2018-10284/patient-focused-

Ashley

  • Mar 11, 2016

Hi, my name is Ashley. I am 24 years old turning 25 in February. I grew up in Pittsburgh, Pennsylvania. I have been known to excel and do what my heart desires. I was about 9 years young when all of a sudden I opened my mouth and heard a slightly loud pop. I was young, so I simply ignored it, and thought it was nothing but growing pains.

At about age 18, my jaw began getting worse just as I was graduating from high school. I was referred to see an oral surgeon. He made me a hard splint. The splint helped for about 2 years. At age 23 my pain really started to kick in, and my teeth kept shifting. 

My boyfriend at the time was unsupportive. To make things worse, neither was his family, and some of my friends were even quite rude. I've been dealing with this since I was 9 years old all the way until now. I have had 3 splints made, including a special one called an "NTI" splint. Splints are not made for long-term use! Nobody ever told me this, and my teeth were moving everywhere especially when I am so young. I have a few health problems such as chronic migraines, a bad heart, and a past history of epilepsy, but I doubt that would contribute to the TMD.

As a chronic pain sufferer I became so desperate I spent over $600 alone on splints! I have tried chiropractic treatment, physical therapy, and ice on my jaw. I have been to at least 3 pain clinics that have been unable to help me. I have even let the doctors inject my face with shots several times, and the pain got worse for almost a whole month! The pain was supposed to go away for at least 6 hours, but the relief lasted for only about 3-4 hours. I am undergoing orthodontic treatment because I have been evaluated many times by physicians, my oral surgeon, dentists, orthodontists, holistic doctors, etc. They all told me to get braces to alleviate the pain.

I am still under A LOT of pain on a daily basis. I barely get any sleep every day; I can barely talk on the phone sometimes. I love singing and cannot sing due to pain. I limit excessive talking and struggle to even take medicine since swallowing is difficult, etc. I am very leery of considering surgery because I have heard nothing but terrible things, and a good outcome is now guaranteed. From my experience and knowledge about living with TMD I urge everyone to make copies of TMD diagrams, educate people, telling them as much as you know based on research and more importantly how YOU live with pain each and EVERYDAY.

I am only 24 years old, and I have to give up so many foods because of how I chew or how difficult it is for me; I don't even like to go out anymore. I feel as if this is taking over my life. The doctors need to step in and really learn how deadly this illness is.
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Please consider sharing your TMD experience with the larger community.  The voice of the patients and loved ones is very important for all of us to hear. The TMJA values receiving this information as it impacts the work that we do. Please send submissions to info@tmj.org.


In Treating TMJ

To view or order a free booklet about TMJ Disorders, visit the National Institutes of Health website.

U.S. DEPARTMENT OF HEALTH & HUMAN SERVICES
National Institutes of Health
National Institute of Dental and Craniofacial Research
Office of Research on Women's Health